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California Action Link for Rare Diseases (CAL RARE) is dedicated to improving the lives of rare disease patients in California. We are a coalition of rare disease stakeholders with a goal to raise awareness among the general public and decision makers regarding rare diseases. We want to bring recognition to the issues rare disease patients face and work to ensure access to physicians, treatments, and social services.
There are more than 7,000 rare disorders that together affect more than 30 million Americans and their families. One in 10 Americans has a rare disease. Half of those affected are children. Rare diseases are defined as diseases affecting fewer than 200,000 people in the United States.