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CDH UK - The Congenital Diaphragmatic Hernia Charity

CDH UK - The Congenital Diaphragmatic Hernia Charity

The Denes, Lynn Rd, Tilney All Saints, King's Lynn, PE34 4RT, United Kingdom

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About Welcome to our registered Charity, leading the way in supporting families and helping to improve outcomes for CDH through education and research.
CDH UK - The Congenital Diaphragmatic Hernia Charity cover
Mission Congenital Diaphragmatic Hernia is an often fatal birth defect affecting 1:2500-3000 babies. There is no known cause or prevention and treatment remains medically challenging. 50% of babies born with CDH do not survive. Of the 50% that do survive, many of these babies will face varying degrees of medical problems throughout their lives. Incredibly, for a condition as common as Cystic Fibrosis & Spina Bifida & that has a high mortality rate, many people have still not heard of CDH. CDH UK is a registered charity that supports babies, children & their families affected by CDH, campaigns for study & research into the cause, prevention & better treatments of CDH and raises awareness of this devastating condition. Visit our website to find out further information & thank you so much for helping to raise awareness and supporting our cause by joining our Facebook page.
Description Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when the diaphragm does not fully form, allowing abdominal organs to enter the chest cavity, and thus preventing lung growth. CDH affects 1 in every 2500-3000 babies, of all races, religious backgrounds, and financial status - no matter how good the antenatal care. The cause is not yet known. 50% of these babies do not survive and sometimes the remaining 50% have to overcome very difficult medical complications. Many CDH babies have minor lasting health problems such as feeding aversions, asthma, scoliosis, or short-term oxygen dependency. A small number have major lasting health problems such as ventilator dependency, brain damage, or hearing problems. Many patients have no long-lasting medical problems at all other than a scar from the CDH repair. CDH can occur alone or with other birth defects, and, rarely, it occurs as part of a syndrome. Every CDH baby is different; there is no way to predict the outcome of any patient. Some babies with no diaphragm and little lung growth survive, while some babies with full lungs do not. These children are very different, requiring different treatments, and varying amounts of medical support. Our aim is to raise awareness of CDH and to offer support and advice to all affected by CDH and to educate on this condition. We are constantly looking for ways in which we can contribute to study and research programmes and hope that one day we can assist in finding a cause and prevention of CDH. For further information on CDH & our charity please visit our website www.cdhuk.co.uk
Founded 1995 Reg. Charity no. 1106065 (England & Wales) SC042410 (Scotland) freephone 0800 731 6991
Products Please join our online support forum for parents raising children with CDH; a safe & private environment for you to post topics, start discussions, give tips & advice & generally support others
We also have facebook support groups for the following:
Expectant families (secret group)- send a facebook message to our main page to join
Families with surviving children (closed group) - go to: https://www.facebook.com/groups/CDHIS/
Bereaved families (secret group) - send a facebook message to our main page to join
  • The Denes, Lynn Rd, Tilney All Saints, King's Lynn, PE34 4RT, United Kingdom
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