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|About||DEBRA International is a constantly growing worldwide network of national groups working on behalf of those affected by the genetic skin blistering condition, Epidermolysis Bullosa (EB).|
To ensure that anyone living with EB has access to the best quality support, medical care and treatment.
To advance research efforts internationally into the care, treatment of and cure for EB.
To raise awareness and understanding of EB amongst health professionals and the general public worldwide.
I M P R E S S U M
DEBRA International, Global Network of Epidermolysis bullosa Support Groups (globales Epidermolysis bullosa Selbsthilfe-Netzwerk)
Am Heumarkt 27/1
1030 Vienna, AUSTRIA
Telephone: +43 1 876 40 30
Telefax: +43 1 876 40 30 - 30
Competent supervisory authority:
Landespolizeidirektion Salzburg, sicherheits- und verwaltungspolitische Angelegenheiten (SVA). Please find here the Austrian Association Act 2002 and the website of the Landespolizeidirektion Wien.
Representation in accordance with the bylaws of the association:
The President shall represent the association. Written documents of the association have to be signed by the President and by the Secretary in order to be effective. However, if financial matters are concerned (dispositions regarding assets) the signature of the President and of the Treasurer is required. In the event that the President, the Secretary, or the Treasurer is prevented, he or she shall be represented by their deputy.
President: Dr Rainer Riedl
President deputy: Dr Francis Palisson
Secretary: Jimmy Fearon
Secretary deputy: Vlasta Zmazek
Treasurer: Michael Fitzpatrick
Treasurer deputy: Gena Brumitt
Other members of the
Basic intention of this medium:
Providing a fanpage in accordance with a Social Media platform in order to present and promote DEBRA International, as well as information regarding Epidermolysis Bullosa, EB-related research and donations.
Purpose of the association:
The association is not for profit and pursues exclusively and directly the purpose of promoting the well-being of people living with Epidermolysis Bullosa (EB).
Elements on the fanpage, such as text, pictures, illustrati