EDS UK, a charity raising awareness of Ehlers-Danlos Syndrome, supporting people & research.
Become a member today - www.ehlers-danlos.org
|Mission||To increase awareness of Ehlers-Danlos Syndrome and provide support for those who are affected by it.|
EDS UK Facebook Rules -
Group posting rules are:
Don't post criticisms of staff or trustees, these should be addresses through the chair of Trustees via the office.
Don't use any offensive language.
Don’t attack others online or say anything that could be considered insulting or provocative.
Don’t intentionally say anything to hurt some else’s feelings or invade their privacy online or offline.
You must respect that one persons experience is often different to that of another. You therefore are not permitted to question the integrity of somebody’s experience.
You must only post about experiences which are that of your own not that you have been told about.
You are not permitted to make remarks about medical professionals or facilities which could be treated as slanderous or malicious.
Do not post any advertising or endorsements.
Contact the group administrator through private message if you have complaints or suggestions, or if you wish to make a contribution to EDS UK.
|Founded||Formed in 1985, officially registered as a charity 1992|
Medical information books
Literature sheets to hand to medical professionals
EDS UK Badge and poster
EDS UK clothing