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Ehlers-Danlos Support UK

Ehlers-Danlos Support UK

Devonshire House, Manor Way, London, WD6 1QQ, United Kingdom

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(+44) 0208 736 5604

Work hours
MO 09:30 – 17:30 SA closed
TU 09:30 – 17:30 SU closed
WE 09:30 – 17:30
TH 09:30 – 17:30
FR 09:30 – 17:30
About EDS UK, a charity raising awareness of Ehlers-Danlos Syndrome, supporting people & research.
Become a member today - www.ehlers-danlos.org
Ehlers-Danlos Support UK cover
Mission To increase awareness of Ehlers-Danlos Syndrome and provide support for those who are affected by it.
Description EDS UK Facebook Rules -

Group posting rules are:

Don't post criticisms of staff or trustees, these should be addresses through the chair of Trustees via the office.

Don't use any offensive language.

Don’t attack others online or say anything that could be considered insulting or provocative.

Don’t intentionally say anything to hurt some else’s feelings or invade their privacy online or offline.

You must respect that one persons experience is often different to that of another. You therefore are not permitted to question the integrity of somebody’s experience.

You must only post about experiences which are that of your own not that you have been told about.

You are not permitted to make remarks about medical professionals or facilities which could be treated as slanderous or malicious.

Do not post any advertising or endorsements.

Contact the group administrator through private message if you have complaints or suggestions, or if you wish to make a contribution to EDS UK.
Founded Formed in 1985, officially registered as a charity 1992
Products Medical information books
Literature sheets to hand to medical professionals
Awareness Pack
Christmas cards
EDS UK Badge and poster
EDS UK clothing
  • Devonshire House, Manor Way, London, WD6 1QQ, United Kingdom
  • Get Directions

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