European Cancer Patient Coalition (ECPC)

European Cancer Patient Coalition (ECPC)

40 Rue Montoyer, Brussels, 1000, Belgium

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+32 23420114

Categories
Now CLOSED
Work hours
MO 09:30 – 17:30 SA closed
TU 09:30 – 17:30 SU closed
WE 09:30 – 17:30
TH 09:30 – 17:30
FR 09:30 – 17:30
About

Nothing about us without us!

European Cancer Patient Coalition (ECPC) cover
Mission ECPC Objectives

* To ensure that the rights of cancer patients are upheld and enforced.
* To increase cancer patients’ representation and influence at the highest level of decision making, nationally and Europe-wide, in all areas that affect their health.
* To empower patients to become true partners in the healthcare system.
* To obtain for patients certain and timely access to appropriate and accurate prevention, medical diagnosis, treatment and care, including psycho-social care.
* To encourage population-based screening programmes according to European quality guidelines.
* To promote the advance of cancer research, to include all applicable information on well-designed Clinical Trials and where possible the right to enrol in them.
* To call for improved multi-disciplinary training of health professionals.

ECPC Aims

* Promoting the fundamental rights of European cancer patients
* Increasing cancer patients influence over all European policies that affect our health
* Ensuring timely access to appropriate prevention, screening, early diagnosis treatment and care
* Promoting the advancement of cancer research
Description

ECPC reunites the largest European cancer patients community, covering almost all cancer types, from the rarest to the most common.

ECPC Members are divided in:

- Full Members
Organisations that fulfill all membership criteria; Full Members have voting rights within the ECPC General Assembly;

- Associate Members
Organisations that do not fulfill all membership criteria; Associate Members do not have voting rights

Full membership of ECPC is open to organisations meeting the following criteria:
1. The organisation shall be registered as a non-profit organisation in one of the EU Member States;
2. The main object of the organisation shall be the advocacy, support and care of cancer patients and their carers. Cancer-specific organisations (eg. lung, leukaemia etc.) shall be considered for membership if they can demonstrate a clear patient focus (advocacy, support and care) to their activities and patient involvement in the organisation’s activities;
3. The majority of those involved in the organisation’s management, directly or indirectly, must be cancer patients;
4. The organisation shall be willing to co-operate with other organisations having the same objectives;
5. The organisation shall be independent of governments, political parties and commercial organisations;
6. The organisation must support and demonstrate a commitment to ECPC’s vision and mission.

Cancer organisations that do not fulfil the above criteria may apply to become an Associate Member or partner of ECPC. For that, they need to:
- Be a cancer-related and patient-oriented organisation;
- Be a non-profit organisation;
- Support and demonstrate a commitment to ECPC’s vision and mission.

ECPC Membership is free of charge.

Founded 2003
Products Every year, the European Cancer Patient Coalition (ECPC) produces its Annual Action Plan, in it which defines key activities to be performed during the following year. The Action Plan, produced by the ECPC Secretariat under the guidance of the ECPC Board, is the implementation blueprint of ECPC Strategy, these can be divided into the following two main categories:

- ECPC Policy Work
ECPC believes in the value of multidisciplinarity, and recognises the need for informed scientifically correct policy action. Our policy initiatives enjoy the scientific expertise gained through participation in several key EU funded projects and built on mutual collaboration of Institutional Partners and active Members.

- ECPC Projects
ECPC is one of the few cancer patients organisation actively involved in the design and implementation of EU funded research projects, among other ongoing activities. The European Cancer Patient Coalition participates in several European Union's Research and Innovation framework programmes: this includes IMI 1 projects, the Seventh Framework Programme (FP7), and IMI 2 projects under the current Horizon 2020 (H2020). ECPC emphaseises the importance of involving patients as co-researchers and strongly advocates for the best partnership model between both researchers and patients, allowing patients to contribute their unique experience working towards a more patient-centric study while participating in crucial project decisions.
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