Sisters by Heart is dedicated to support and advocacy for the HLHS community.
Sisters by Heart provides support, education, and empowerment to families affected by Hypoplastic Left Heart Syndrome (HLHS) - from initial diagnosis and beyond.
Do you know someone whose child recently received a diagnosis of HLHS? Nominate them to receive one of our specially designed care packages. Email us, either through Facebook or at our email address firstname.lastname@example.org with the following information: mother's name, address, due date or birth date, hospital where the child will receive treatment and the child's complete diagnosis.
Sisters by Heart is intended to be a support group only. We do not have any medical expertise. We are here to give our personal experiences and offer our support for newly diagnosed parents going through this HLHS journey. Any advice or suggestions we may give do not take the place of medical advice. You are strongly encouraged to speak with a medical professional regarding your child's specific condition.