SWAN UK (Syndromes Without A Name) thumb

SWAN UK (Syndromes Without A Name)

Genetic Alliance UK, Unit 4D Leroy House, 436 Essex Road, N1 3QP London, United Kingdom

Get Directions

Add phone number

Categories

Work hours

Add information

About

SWAN UK (Syndromes Without A Name) is an initiative of the charity Genetic Alliance UK offering support and information to families of children with undiag
SWAN UK (Syndromes Without A Name) cover

Mission

SWAN UK (Syndromes Without A Name) is run by the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions.

Genetic Alliance UK aims to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them.

Supporting:
We seek to raise awareness of genetic conditions and improve the quality of services and information available to patients and families.

Campaigning:
We actively campaign on issues of policy and practice to influence governments, policy makers, industry and care providers such as the National Health Service.

Uniting:
We provide a united voice for all those affected by genetic conditions, enabling us to work together towards a common goal of making life better for patients and families at

Description

SWAN UK (Syndromes Without A Name) is run by the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions.

To become a member of SWAN UK please email info@undiagnosed.org.uk or visit www.undiagnosed.org.uk/join

Founded

Original Charity 1999-2009. Re-established May 2011
Share
  • Genetic Alliance UK, Unit 4D Leroy House, 436 Essex Road, N1 3QP London, United Kingdom
  • Get Directions
Similar places nearby