SWAN UK (Syndromes Without A Name)

SWAN UK (Syndromes Without A Name)

Genetic Alliance UK- Level 3, Barclay House, 37 Queen Square, London, WC1N 3BH, United Kingdom

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SWAN UK (syndromes without a name) is run by the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions.

SWAN UK (Syndromes Without A Name) cover
Mission SWAN UK (Syndromes Without A Name) is run by the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions.

Genetic Alliance UK aims to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them.

Supporting:
We seek to raise awareness of genetic conditions and improve the quality of services and information available to patients and families.

Campaigning:
We actively campaign on issues of policy and practice to influence governments, policy makers, industry and care providers such as the National Health Service.

Uniting:
We provide a united voice for all those affected by genetic conditions, enabling us to work together towards a common goal of making life better for patients and families at
Description

SWAN UK (syndromes without a name) is run by the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions.

To become a member of SWAN UK please email joinus@undiagnosed.org.uk or visit www.undiagnosed.org.uk/join

For any queries please email info@undiagnosed.org.uk

Founded Original Charity 1999-2009. Re-established May 2011
  • Genetic Alliance UK- Level 3, Barclay House, 37 Queen Square, London, WC1N 3BH, United Kingdom
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