The Hypermobility Syndromes Association

The Hypermobility Syndromes Association

Hypermobility Syndromes Association, 49 Greek Street, London, W1D 4EG, United Kingdom

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03330116388

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Now CLOSED
Work hours
MO 09:00 – 21:00 SA 09:00 – 21:00
TU 09:00 – 21:00 SU 09:00 – 17:00
WE 09:00 – 21:00
TH 09:00 – 21:00
FR 09:00 – 21:00
About

The HMSA is a UK charity that provides information & support for those affected by one of the Hypermobility Syndromes. hypermobility.org 03330 116388

The Hypermobility Syndromes Association cover
Mission The HMSA aims to provide support and information to those affected by the Syndromes and to promote knowledge and understanding within the medical community and the public at large.

We hope to assist sufferers to come to terms with their HMS and the distress that it can cause. The severity of the effects of HMS varies with the individual: some have few symptoms others are severely affected. HMS is an 'invisible illness' and because of this we can look well to the outside world but are often in severe pain. Moreover the nature of hypermobile joints combined with frail tissues means that we are prone to injury when performing simple everyday tasks. This opens us to skepticism, particularly by those in the medical profession who know little about the HMSs. The pain, stress and frustration can lead to depression: thus depression can often be mistaken as the cause of the illness, not a result of it.

We work closely with those in the medical community with a special interest in HMS. Through our newsletters we aim to provide members with updates on the developments and issues within the medical community. As patients we need as much current and useful information as is available.

In turn it is our aim to provide those in the medical community with information about living with HMS. We can provide valuable data for research just by working as group rather than as individuals. Working in a proactive and mutually beneficial relationship with the medical community, the HMSA acts as both a support group as well as a force for advocacy for those with HMS.
Description

The Hypermobility Syndromes Association (HMSA) is a charity run by & for people diagnosed with one of the Hypermobility Syndromes such as Joint Hypermobility Syndrome (or Hypermobility Spectrum Disorder, HSD), Ehlers-Danlos Syndrome all sub-types, Marfan, Stickler, Osteogenesis Imperfecta, Pseudoxanthoma elasticum and other hypermobility related health problems.

Often an umbrella term such as Hypermobility Syndrome (HMS) is used. Some of these Hypermobility Syndromes are heritable connective tissue disorders which can be extremely complex, multi-systemic and include chronic pain, fatigue, injuries, gastrointestinal, bladder and autonomic dysfunction such as POTs . Visit our website for more information under help and advice.

Founded 1992
Products Facebook: http://www.Facebook.com/TheHMSA,
Twitter: http://Twitter.com/HMSACharity,
Pinterest: http://www.pinterest.com/hmsacharity/,
Instagram: http://instagram.com/hmsacharity,
Tumblr: http://hmsacharity.tumblr.com/,
LinkedIn: https://www.linkedin.com/company/5266356?trk=tyah&trkInfo=tarId%3A1405985647769%2Ctas%3Ahmsa%2Cidx%3A2-2-5,
Google Plus: https://plus.google.com/u/2/114648887084988366679/posts
YouTube: https://www.youtube.com/channel/UCreqlfHzrYTxg0IrdGuDvEQ
  • Hypermobility Syndromes Association, 49 Greek Street, London, W1D 4EG, United Kingdom
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