Tyler's Hope was created to passionately pursue solutions and a cure to the pain and limitations caused by DYT-1 Dystonia.
We are inspired by the fearless energy, courage and love of life exemplified daily by our namesake and his sister, Samantha.
Dystonia is a neurological movement disorder characterized by involuntary muscle contractions, which force certain parts of the body into abnormal, sometimes painful, movements or postures. It can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords. Abilities such as cognition, strength and the senses are normal in Dystonia sufferers, though speech can be impaired as a symptom.
Dystonia is the third most common movement disorder after Parkinson’s Disease and Tremor. It does not discriminate, and affects people of every race and ethnic group and one-third of Dystonia patients are children. Dystonia affects more people than Muscular Dystrophy, Huntington’s Disease and Lou Gehrig’s Disease.